This policy describes how and why The Cancer Awareness Trust collects, uses and protects your personal information and your rights and choices regarding this information. This relates to all data and information collected for the purposes of developing the charity, the movement and The Cancer Platform. Our promise is to respect any of your personal information which is under our control and to keep it safe. Our aim is to be clear when we collect your information about what we will do with it and how it helps us to deliver the best service for you.  

No needless questions! You can opt out at any time by emailing us at contact@cancerawarenesstrust.org

The Privacy Policy detailed below relates to our live development of this website and is regularly updated to reflect changes to our site ahead of our full platform launch in 2023.

This policy was last updated 22nd September 2022.

How do we collect your personal information?

There are a number of ways we collect information. It’s only ever to improve on our mission and never to compromise your personal details.

You might give us your information directly, by signing up as a donor, supporter, contacting us via the contact form or otherwise communicate with us.

We collect your personal information using cookies and other tracking methods when you use our website. There are more details on the cookies and tracking methods we use in our Cookie Policy and this is evolving all the time to deliver ever greater transparency.

We also get information about the type of device you are using and any issues in performance that may help us to improve the user experience.

Your information may be shared with us by third parties, meaning you have indirectly shared it with us. This can happen when other fundraising sites, research sites or partners share your information, where you have given approval for this to happen.

We also receive data about you from subcontractors acting on our behalf, including those who provide us with technical, payment or delivery services, and from business partners, advertising networks and search/analytics providers used on our website. We try to limit this, focussing on systems that tell you when your data is being shared and for what reason. We strongly recommend you check any privacy policy provided to you where you give your data to a third party.

We also get some of our data and information from other sources, which all depend on your settings or the privacy policies of those providers - for example, with social media companies. Where we get involved in communications on those platforms, data is shared in line with the privacy policies held by each of those platforms and we use it to strengthen the content and user experience of our platform.

Your information might be shared by social media and messaging services like Facebook, WhatsApp or Twitter if you’ve given permission to do so with their privacy policies.

Our team strengthens our information about supporters, partners and collaborators with publicly available information too. This primarily comes from charity websites, their fundraising reports and annual reviews, corporate websites and information about trusts and foundations, public social media accounts, the electoral register, Charity Commission and Companies House in order to create a fuller understanding of why you might support our mission.

What personal information do we collect?

Firstly - our approach to collecting your personal data means we are upfront about what and why we are collecting it and it’s only to improve the use of our website and The Cancer Platform.
To be clear on our definitions - personal data, or personal information, means any information about an individual, about you, from which that person can be identified. It does not include anonymous data
There are a number of bits of data we store, only ever with your consent:
Your name
Your contact details (including postal address, telephone number, e-mail address and/or social media identity if provided)
Your bank or payment method details where you provide these to make a payment and only ever via a secure system
Your activities on our website and social media platforms when you interact with us and our content.
About the device you use to access our content, for instance your IP address and geographical location.
Information about new content, activities, news and products which we think you’ll be interested in.
Information about your health where you have shared your personal story with us.
Whether you are a UK taxpayer to enable us to claim Gift Aid on any donations made.
Age, date of birth, gender, nationality and ethnicity information for monitoring purposes
And lastly - any other personal information you provide to us.
Data protection laws (and our values) means some of your data is classed as sensitive. This means we class it as ‘special category data’ and this includes your health, religion, race, political, sex life, membership of bodies/unions, and any genetic/biometric information.
We would only ever collet this information if there was an explicit need to do so - like participation in an event, or a funded opportunity with criteria and you’d be told this before you share the information and before we collect, store and use it.

How we use your personal information?

We are a start-up with a small team, looking to change the way transparency is approached in the use of data. We’ll be upfront in how we use it, when we use it and why giving us more helps us to improve your cancer journey. 

We will use personal information to:

Deliver the best possible experience of our platform - providing you with the services, products or information you asked for
To manage your donation or support for our platform, including processing Gift Aid
To keep accurate relationship records so we give you a good user experience
To respond to or fulfil any requests, contact, complaints or queries you make to us
To know how we can improve the whole experience of connecting with us and the platform
To promote and manage our events
We’ll check for updated contact details using third party sources so that we can stay in touch if you move but also encourage you to keep your information up to date
To further our charitable objectives, though we are explicitly set up to deliver this platform and transform the cancer journey
To manage your user experience when you set up personal accounts on our platform
To communicate ideas, content and opportunities to you
To respond to your suggestions of new content to feature on the platform
To administer our website and platform ensuring it runs well and to troubleshoot, perform data analysis to test performance and respond to what you want, research needs, generate statistics and surveys related to our technical systems
To reach out to you when you’ve reached out to us using any of the technical forms like the contact us forms
To help us ensure the content works on whatever device you are looking at it on. To identify potential supporters, donors and content partners
We’ll monitor website use to identify visitor location, guarding against disruptive use, monitoring website traffic, personalise information which is presented to you. For audit purposes and to administer our accounts
Ensuring we meet our legal obligations to regulators, government and/or law enforcement bodies. To carry out fraud prevention and money laundering checks where donations are being made. We may also obtain information about potential donors or individuals who might want to support us by fundraising or by speaking about their experience with cancer where these have been shared publicly, where they have not previously provided us with information.

Which information do we use?
We use data which has been provided directly to us and combine this with information from publicly available sources such as charity websites, the Charity Commission, our partners, and annual reviews, corporate websites, public social media accounts, the electoral register and Companies House in order to create a fuller understanding of someone’s interests. We only use reputable sources, where someone would expect their information may be read by the public.
We never use data we believe has not been lawfully or ethically obtained, and we do not use information sources which have not been made public.
The data is yours! If you want us to use it differently or discuss not using your data - get in touch with us contact@cancerawarenesstrust.org
Our website may include links to third-party websites. Clicking on those links or enabling those connections may allow third parties to collect or share data about you. We do not control these third-party websites or how they use personal data and strongly encourage you to read their privacy policies before proceeding in using their websites.

Do we keep your personal information safe?

Online forms are always encrypted and our network is protected and routinely monitored. We work closely with a tech team to regularly assess these measures.

As a global platform with global partners, not everyone has the same regulatory conditions - but we work with all to ensure they match the requirements set in the UK.

Your rights explained

Under UK data protection law, you have rights over personal information that we hold about you. We try to operate to these measures globally.

You have a right to request access to the personal data that we hold about you. You also have the right to request a copy of the information we hold about you. We will provide you with this unless legal exceptions apply.

To get hold of your data records, email us contact@cancerawarenesstrust.org and expect a response within 5 working days.

You also have the right to have inaccurate or incomplete information we hold about you corrected. If you believe the information we hold about you is inaccurate or incomplete, please provide us with details and we will investigate and, where applicable, correct any inaccuracies.

You have a right to ask us to restrict the processing of some or all of your personal information in the following situations: if some information we hold on you isn’t right; we’re not lawfully allowed to use it; you need us to retain your information in order for you to establish, exercise or defend a legal claim; or you believe your privacy rights outweigh our legitimate interests to use your information for a particular purpose and you have objected to us doing so.

You may ask us to delete some or all of your personal information and in certain cases, and subject to certain exceptions, you have the right for this to be done. If we are unable to delete your information, we will explain why this is the case.

If we are processing your personal information based on your consent, or in order to enter into or carry out a contract with you, and (2) the processing is being done by automated means, you may ask us to provide it to you or another service provider in a machine-readable format.

If we are processing your personal information based on our legitimate interests or for scientific/historical research or statistics, you have a right to object to our use of your information.

To exercise any of your rights please provide the details to us by email contact@cancerawarenesstrust.org

Exceptions apply to a number of these rights, and not all rights will be applicable in all circumstances. For more details we recommend you consult the guidance published by the UK’s Information Commissioner’s Office or your relevant in-country regulator for data privacy. If you aren’t sure who that is, get in touch and we’ll direct you as best we can.

How long do we keep hold of your personal information?

This depends on how we are using it which we will have explained to you when you give it to us.

We consider the following:

How long your personal data is likely to remain accurate and up-to-date and support the improvements to our platform and user experience

How long the personal data might be relevant to possible future legal claims against the charity

Any and all applicable legal, accounting, reporting or regulatory requirements which specify how long certain records must be kept by the charity.

How and when will we use your personal information to contact you?

We think it’s important to reach out to you for a number of reasons, but only where you’ve asked us to, or where we think you’ve shown an interest. This might include:

New content added to the platform which supports your needs

Updates about fundraising/donor activity

New announcements of partners, functions on the platform and events which benefit your cancer journey

We’ll tailor what we send to you and how often we do so based on your preferences. You can get in touch with us to update your preferences at any point by emailing contact@cancerawarenesstrust.org

What is our legal basis for processing your information?

Use of your data is governed by data protection laws. Each time we use your information, we must have a legal basis for doing so. We comply with current UK data protection legislation which sets a strong standard globally.

Consent is where we ask you if we can use your information in a certain way, and you agree to this. Where we use your information for a purpose based on your consent, you have the right to withdraw consent for any future use of your information for this purpose at any time. Email us contact@cancerawarenesstrust.org to request this.

We have a legal basis to use your personal information where we need to do so to comply with one of our legal or regulatory obligations. This includes the Charity Commission, Fundraising Regulator, Information Commissioner and Companies House, or to use information we collect about you for due diligence purposes.

We have a legal basis to use your personal information if it is reasonably necessary for us (or others) to do so and in our/their “legitimate interests” (provided that what the information is used for is fair and does not unduly impact your rights).

We consider our legitimate interests to include all of the day-to-day activities The Cancer Awareness Trust carries out.

Our legal basis for our donors and supporters relates to the updating of your address using third party sources if you have moved house though we’ll always take the approach of encouraging you to do this first.

Also includes the use of personal information when we are monitoring use of our website or apps for technical purposes, updates and improvements to user experience.

We are signed up to the UK Fundraising Regulator which provides further best practice guides on how we go beyond our legal basis for using your data.

When we use special category personal data, we require an additional legal basis to do so under data protection laws, so will either do so on the basis of your explicit consent or another route available to us at law for using this type of information. We may reach out to you to confirm this.

How can you register a complaint?

Formal complaints can be emailed to us at contact@cancerawarenesstrust.org and made for the attention of the Managing Director and/or Board of Trustees or you can use the contact form on the Support Us page.

How can you contact us to discuss our approach in more detail?

Email us at contact@cancerawarenesstrust.org with your questions and we’ll do our best to get back to you within 5 working days.